As of September 1, 2016, The PREDICT-HD study and related ancillary studies have now concluded. The final stages of curation and analysis are underway, as well as data sharing. Investigators around the world will soon have access to the rich set of phenotypes and genotypes that were collected during the 14 years of data acquisition. An early copy of the phenotype data-set can be requested at the National Library of Medicine’s Database of Genotypes and Phenotypes here with updates pending that will include raw and pre-processed MR images, results from image analyses, results from wet biomarker assays such as proteomics, metabolomics, etc. If you are interested in accessing biological samples from the project, please see the NINDS BioSEND project .
The following is a comprehensive list of the scientific publications that resulted from the PREDICT-HD project and can be found here. In addition, selected PREDICT-HD articles have been summarized and can be accessed here.
We wish to thank the patients and their families for their participation and support of this project as well as the hundreds of investigators, researchers, and staff members that made this important work possible.
If you are interested in participating in future research involving Huntington Disease, please visit the sign our registry so that you may learn about any further opportunities to participate or support research and upcoming clinical trials. To sign our registry and to find out more about additional studies on HD at the University of Iowa, please visit the Huntington’s Disease Center of Excellence website here.